Children with neuromuscular disorders are set to benefit from the creation of a new specialist nursing role at Addenbrooke’s Hospital in Cambridge.
The full-time paediatric neuromuscular nurse post will be funded for two years by Roald Dahl’s Marvellous Children’s Charity.
After that, Cambridge University Hospitals NHS Foundation Trust, which runs the hospital, has committed to funding the role for a further three years.
“The nurse will optimise the care our current 116 children are receiving”
The new nurse will provide specialist information, emotional support and care to families affected by conditions such as Duchenne muscular dystrophy.
The role will be an essential link between families and the hospital and other services in the region, as well as providing training and co-ordinating research.
“The new specialist nurse will play a vital role in developing our service to help more children and young people with complex neuromuscular disorders,” said Dr Gutam Ambegaonkar, the hospital’s lead for paediatric neuromuscular services.
“The nurse will optimise the care our current 116 children are receiving and also seek out children and young people from across the region who are not currently receiving any care at all.”
The trust is currently accepting applications for the new position.
It will be the third specialist children’s nurse post based at Addenbrooke’s that has been funded by the charity.