'Those with a rare disease often know more about it than we do'
It may seem an obvious thing to say but the problem with a rare disease is that it is rare.
Get unlimited access
As a subscriber you will benefit from:
- Full online and mobile access to news and opinion stories
Customised email alerts straight to your inbox (over 30 alerts available)
- 4,500 practice articles in our archive
- Over £500 worth of CPD learning units