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Practice comment

“Person-centred care is led by learning disability nurses”

No one who watched the Panorama documentary on the Winterbourne care home for people with learning disabilities could have felt anything but extreme distress and anger.

It showed how care can turn into abuse when a values-based approach, an open, positive culture and effective leadership are absent.

Undercover Abuse was an excellent documentary. It led to the home closing and stimulated a much-needed debate on learning disability services and learning disability nursing. It saddens me that it takes such events to achieve this focus.

It often seems learning disability nurses are the forgotten relatives of the nursing world. If mental health is the Cinderella service, what does this make learning disability services – the ugly sister?

Learning disability nurses have led the way in developing person-centred care, working across sectors and in partnership, and supporting service users throughout care pathways. Without these pioneers, the profession would have been much slower to develop holistic care.

As director of nursing and operations at the only foundation trust for people with learning disabilities, I know there are many positive practices in our secure and community services.

The trust is in the middle of a project to establish care pathways that are as person centred as possible. This will encourage implementing the most effective models of care to meet individual needs, with the aims of reducing length of stay, supporting transitions to community services and improving client outcomes.

Service user involvement has been crucial at every stage to ensure care pathways are meaningful and meet needs. Engagement of staff in all disciplines has been sought. What is pleasing is the excitement, ownership and leadership from nursing teams to take this work forward.

We are also using the project to shape our learning and workforce strategy to ensure staff have the right values, skills and knowledge at every stage of the pathway.

For example, an advanced practitioner and her team, who specialise in autism, carry complex caseloads and are working to support and role-model best practice to multidisciplinary teams. Clients with autism have complex needs, particularly when faced with the legal and criminal justice system. Advanced practitioners have developed expertise in delivering care within a clear human rights framework.

Another innovation has been using advanced practitioners’ clinical skills to support inpatients’ physical health.

Within our community teams, nurses enable people with complex disabilities to live meaningful lives in the community.

I am encouraged by initiatives both at Calderstones and across the UK. Nurses continue to lead the way with their expertise in person-centred care underpinned by a human rights approach.

The UK framework for learning disability nursing will provide a fantastic opportunity to raise the profile of this area and improve practice and leadership. NT

Paula Braynion is director of operations and nursing at Calderstones Partnership Foundation Trust

Readers' comments (3)

  • “Person-centred care is led by learning disability nurses”

    it is not led by disability nurses. in my university hospital we have always practiced patient centred care and always will. this group are just nurses and are no better, worse or any different from any others. presumably they have had the same basic training and registration as the rest.

    Unsuitable or offensive?

  • I worked as a Learning Disability Nurse for over 15 years in the UK and the concept of Person-centred care wasn't something that was only discovered! This concept now adds huge value to my current role as a Behaviour Consultant with Alzheimers Australia. It goes without saying that every human irrespective of disability should be supported to make choices and decisions that affect their life.

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  • it is extraordinary how NT and researchers keep coming up with so many revelations about nursing care which have been practiced for years. I suppose they have to sell their journal somehow by trying to make cheap journalism 'sensationalist' but it is a pretty poor attempt and undermines the work of nursing. no wonder the profession does not have the reputation it deserves!

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