Dementia sufferers and their carers can now seek help from a new booklet that aims to guide them through their journey with the condition.
Launched by the Alzheimer’s Society, the guide is the first of its kind to provide the information someone needs after a diagnosis of dementia.
It offers advice to help people come to terms with their diagnosis, plan ahead and enable them to live well in the future. Carers can also access the booklet to find information about how to look after someone with the cognitive disorder.
Around 820,000 people in the UK are currently affected by dementia, while 25 million of the UK population have a close friend or family member with the condition.
It is estimated, however, that 428,000 of those affected still do not have a formal diagnosis and are not able to access treatments and support.
The guide is published a year on from the ‘Unlocking diagnosis’ report from the All Party Parliamentary Group on dementia, which found that many people said ‘nothing’ happened after a diagnosis.
The booklet is available free of charge and includes sections focusing on the emotional impact of a diagnosis; drug treatments that are available; signposting to services that are available through the NHS; social services, charities and private organisations; and support for carers.
Alastair Balls, Chairman of Alzheimer’s Society, said: “Many people struggle to know what to do and where to turn when they are diagnosed with dementia. This new guide is the first resource that brings together the key information people need following a diagnosis of dementia, supporting thousands of people as they come to terms with the condition. We hope it serves to convince more healthcare professionals of the importance of diagnosis, demonstrating how it can open doors and enable people to access the help they desperately need.”
Are you able to Speak out Safely?
Sign our petition to put pressure on your trust to support an open and transparent NHS