Maintain pressure on reforms to protect NHSHuntington's disease prevalance double previous estimates
The number of people in England and Wales with the hereditary degenerative condition Huntington’s disease is twice that currently assumed, according to the chair of the NICE.
Previous studies have put prevalence at 6.7 cases per 100,000 of the population, equivalent to around 6,700 cases. But Sir Michael Rawlins said “the true prevalence is unquestionably greater” and must be at least 12.4 per 100,000.
Writing in The Lancet, he said he believed people kept the condition hidden to avoid higher insurance payments.
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