Cancer nurses are being encouraged to distribute personalised information packs to blood cancer patients, as part of a new charity initiative.
Under the initiative launched to mark World Cancer Day on Saturday 4 February, patients will be able to collate and store all of their illness specific information within a personalised folder.
“The folder allows all the information to be kept in one place”
The folder will accompany a diary for patients to record their thoughts and feelings, and the contact card for their clinical nurse specialist, said Blood cancer charity Bloodwise.
It created the folders after survey findings suggested that more than 90% of blood cancer patients wanted information at diagnosis about their specific condition and potential treatment procedures.
The charity noted that, given the 137 different types of blood cancer, it could be confusing for newly diagnosed patients to identify the specific medical and lifestyle information that may help them.
“We hope these folders will help ensure… everyone gets the personalised information and support they need”
Acute leukaemia nurse Gill Brisley, who works at the Catherine Lewis Centre in Hammersmith Hospital, said: “There is a lot of information to take in, particularly at diagnosis. This can often be overwhelming for patients and relatives.
“As a clinical nurse specialist, it has been really helpful to give my patients a comprehensive, individualised information pack that they can read in their own time,” said Ms Brisley.
“The folder allows all the information to be kept in one place and looks far more professional, and there is a purpose made slot for a clinical nurse specialist contact card too, which has proved really useful,” she said.
Reta Brownlow, head of patient services at Bloodwise, added: “We hope these folders, combined with our wide range of blood cancer information, will help ensure that everyone affected by blood cancer gets the personalised information and support they need to help them through treatment and beyond.”
- The patient folders, which are available for free to nurses and patients, can be ordered online or requested via firstname.lastname@example.org or 0808 2080 888.
Tailored information packs for blood cancer patients