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Children's heart surgery booklet launched

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A charity which helps support children with major heart problems has published a booklet offering advice on a key surgical procedure.

Little Hearts Matter was told by families of children facing surgery that information on the Fontan process would be invaluable.

Launched at the British Cardiovascular Conference on Tuesday, the leaflet tells the story of a child called Charlie Turner, aged eight, who had a complex heart condition which meant he effectively had only half a pumping heart.

It details his experiences and offers information, tips and guidance on how to deal with preparation for the surgery and the procedure itself.

If successful, the Fontan process will ensure children have far more energy than they had before the surgery. While it may not match those of children with a fully functioning heart, it can make a huge difference to their quality of life.

Chief executive of Little Hearts Matter Suzie Hutchinson said: “Families of children facing heart surgery have told us that a booklet clearly outlining the Fontan process would offer vital support and information at a time when they face the stress of open-heart surgery.”

She thanked the Robinson family for funding the booklet and Charlie Turner and his family for allowing their story to be told.




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