Tips on living with rare auto-immune diseases and how to access government benefits are included in a new guide put together by a charity and doctors.
Aimed at patients, families and healthcare professionals the 112-page Route Map For Vasculitis includes information on each type of the disease, treatments and how to support children and young people who are affected by it.
Launched by the patient-led charity Vasculitis UK the guide, funded by the Department of Health, was put together with help from the Genetic Alliance and doctors in the University of Birmingham’s Department of Renal Immunobiology.
Professor Lorraine Harper, professor of nephrology and medical adviser to Vasculitis UK, said: “The diseases we call vasculitis are rare but have a big impact on the people they affect. We hope the Route Map will become a reference source for people affected by any kind of vasculitis and the GPs who care for them.”
Nine other charities have also been helped in developing disease-specific route maps.