A charity has set up a new website to help patients with multiple sclerosis discuss the array of drugs available to treat them with specialist nurses and other health professionals.
According to a survey by the MS Trust, patients describe the experience of choosing a disease modifying drug as “frightening”, “overwhelming”, “stressful” and “confusing”.
“By helping people become better informed and have better discussions with their health professionals, we can make a real difference to their long-term health”
There are now 11 disease modifying drugs for relapsing-remitting MS available in the UK, each of which have complex risks and benefits.
The charity said that 87% of respondents to its survey said they would welcome tools that could help them understand their options in the context of factors that were important to them.
As a result, the MS Trust is launching MS Decisions – described as an independent, interactive online guide to MS drugs.
It includes background information on all the treatments, answers common questions, helps people think about issues important to them, and allows them to compare different drugs at a glance.
Amy Bowen, director of service development at the MS Trust and a nurse, said: “We are rapidly entering a new era in MS care, and, with tools like MS Decisions, the MS Trust is helping to lay the foundations.
“By helping people with MS become better informed about their options and have better discussions with their health professionals, we can make a real difference to their long-term health,” she said.