A charity that supports people with the rare neurological condition Progressive Supranuclear Palsy (PSP) has created a resource to help nurses provide the best care for sufferers.
The Care Pathway for PSP, launched by the PSP Association, sets out the type of care and support people with the condition need from diagnosis onwards.
The pathway was developed in the light of a national survey of people with PSP and the health and social care professionals involved in their care.
It includes information on symptoms, standards of care, and best practice and the kind of support and services patients may need as well as draft costings.
“PSP is very personal to each individual and symptoms can be experienced at different points and to varying degrees of severity, making it incredibly difficult for carers and professionals to plan and provide services,” said Debra Chand, the PSP Association’s director of care.
“The aim of the care pathway is to alleviate some of that unpredictability by mapping out a full list of possibilities and solutions.”