Your browser is no longer supported

For the best possible experience using our website we recommend you upgrade to a newer version or another browser.

Your browser appears to have cookies disabled. For the best experience of this website, please enable cookies in your browser

We'll assume we have your consent to use cookies, for example so you won't need to log in each time you visit our site.
Learn more

People with chronic fatigue 'lacking support', claims charity

  • Comment

There is a “shocking” lack of support for people who have a disabling condition which causes severe exhaustion, a new report claims.

Patients with Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) are being “neglected”, charity Action for ME said.

The charity’s latest report found that just three in 10 patients believe their family doctors are well informed about their illness.

“There is still a long way to go in providing targeted health and social care services”

Sonya Chowdhury

Of 2,000 sufferers surveyed, half said they had not been to a specialist clinic in the past five years.

And 80% said they had not had a social care assessment in the same time frame.

Action for ME chief executive Sonya Chowdhury said: “Even though we know from the people with ME/CFS who contact us every day about the lack of services or support they have access to, these results are still shocking.

Action for ME

Sonya Chowdhury

“We know that there are many brilliant and supportive professionals working with people with ME/CFS out there. But there is still a long way to go in providing targeted health and social care services to meet the complex needs of people with ME/CFS, particularly those who are more severely affected.”

The NHS said that CFS or ME causes persistent exhaustion that affects everyday life and doesn’t go away with sleep or rest.

Around 250,000 people in the UK are thought to be affected by the condition.

  • Comment

Have your say

You must sign in to make a comment

Please remember that the submission of any material is governed by our Terms and Conditions and by submitting material you confirm your agreement to these Terms and Conditions. Links may be included in your comments but HTML is not permitted.