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Greater knowledge of Down's syndrome would benefit nurses

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Nurses and midwives need to improve their knowledge of Down’s syndrome to help and support parents of babies with the condition, a UK study has shown.

University of Hertfordshire researchers interviewed 10 parents of babies with Down’s syndrome during their postnatal care period.

The parents reported limited opportunities to talk about the needs of their new born babies because they perceived healthcare professionals to be embarrassed, or lacking in knowledge about the condition, said the researchers.

They added that the parents also felt the practical advice and emotional support available to cope with their new experience was inadequate.

Lead author Roja Sooben, senior lecturer at the centre for research in primary and community care at the university, said: ‘The lack of balanced information for parents raises a number of implications for maternity care policy, practice and healthcare education.

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Readers' comments (1)

  • In order to follow up on improving care for parents and children with Down's Syndrome you may want to use the contact details of Up on Downs, Hertfordshire's Down's Syndrome Suport Group.
    c/o Sande Nuttall
    Hon. Sec. Up on Downs
    14 Rowan Crescent
    Letchworth SG6 4EY

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