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Charity partnership on nurse-led helpline for Lewy body dementia

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Two charities are today launching a new collaboration to provide a helpline for those affected by Lewy body dementia, which will be run by specialist nurses.

The Lewy Body Society and Dementia UK have set up a new partnership to offer expert advice and information through the latter’s existing Admiral Nurse Dementia Helpline.

“It is essential that people living with Lewy body dementia and their carers have access to expert advice and information”

Jacqueline Cannon

The helpline, which is run by Dementia UK for anyone with a question or concern about dementia, is staffed seven days a week by specialist dementia nurses and is free to call.

Lewy body dementia is the second most common form of age-related neurodegenerative dementia. It is thought that around 130,000 people in the UK are living with it.

From today, when anyone affected by Lewy body dementia who calls the Lewy Body Society will be directed to the Admiral Nurse Dementia Helpline for advice and support.

Jacqueline Cannon, chief executive of the Lewy Body Society, said: “It is essential that people living with Lewy body dementia and their carers have access to expert advice and information, to help them understand the disease and how to live with it.

“Rather than duplicating and providing this service ourselves, we are delighted to partner with Dementia UK and signpost people affected by Lewy body dementia to the excellent Admiral Nurse Dementia Helpline,” she said.

She added: “This allows us to focus our efforts on our core objectives of funding research into the diagnosis and treatment of Lewy body dementia, and raising awareness of the disease.”

Paul Edwards, director of clinical services at Dementia UK, said: “This is a valuable partnership in which the Lewy Body Society is able to concentrate its efforts on research into this particular type of dementia, while Dementia UK’s Admiral Nurses can provide the compassionate and knowledgeable support and advice that families affected by dementia need.”

  • The Admiral Nurse Dementia Helpline is available on 0800 888 6678 and is open Monday to Friday 9am-9pm and weekends 9am-5pm.
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