A new online learning package has been launched to try and help improve community nursing care for young people in the “transition” process from children’s services to adult community services.
It hoped that the new online resource would help to “share and embed good practice” in transition for young patients with long-term conditions, a process which can be “confusing” and “stressful”.
“This process can be stressful and confusing for young people and their families”
The resource, developed by the Queen’s Nursing Institute, includes a short video recording the views of young people in transition and of practitioners working in the field.
The resource is a key outcome of a two-year project, led by Dr Candice Pellett and funded by the Burdett Trust for Nursing.
To produce the resource, the QNI held 10 focus groups in different parts of the country and conducted three online surveys, as well as undertaking wider stakeholder involvement.
In all, the views of around 900 people were used to inform the resource, said the institute.
In addition, the QNI carried out a review of academic literature in this area, which is also available on the QNI’s website.
The literature review confirmed that there is currently a dearth of knowledge in this specific area, noted the QNI.
Dr Pellett, a Queen’s nurse herself, said: “Young people who are born with, or who have been diagnosed with a long term health condition during childhood, are supported by dedicated children’s services, working with their parent(s) or guardian(s).
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“Once people reach young adulthood, they normally need to transition to adult health services,” she said.
“This process can be stressful and confusing for young people and their families, if for example there are gaps in communication or lack of joined up working,” she said. “This can lead to gaps in care delivery and adverse health impacts.
“The new resource has been developed following an in depth consultation process with nurses, educators, young people and parents,” she said.
She added: “The resource is designed to help nurses understand the issues that young people (and their families) face, improving practice in this key area and the experience of young patients.”
Dr Pellett was assisted throughout the development process by a young person who had experienced the transition to adult services, Hannah Phillips.