One in three Primary Care Trusts (PCTs) in England have promised to improve services for disabled children.
Over one third of English PCTs have signed a disabled children’s charter, put forward by the campaign group Every Disabled Child Matters (EDCM).
By signing up, PCTs are committing to provide families with information, appoint key workers to co-ordinate services and to involve disabled children and parents in their service planning.
There are 100,000 severely disabled children in England. One in five children in every council are disabled.
Only 6% of families with disabled children get any form of special support from the state.
Christine Lenehan, EDCM board member and director of the Council for Disabled Children, said: ‘It is shocking that the vast majority of families still have to fight to get the services they need.
‘Signing our campaign charters is an ideal way for local authorities and PCTs to transparently demonstrate their commitment to families.’
Three PCTs in Birmingham have recently signed a joint charter with Birmingham City Council.
EDCM is a joint campaign by the Council for Disabled Children, Mencap, Contact a Family and the Special Educational Consortium.