Members of Scottish parliament have agreed to take action to ensure people with Parkinson’s disease are given their medication on time when they are admitted to hospital.
Holyrood’s public petitions committee was told that patients can be rendered helpless if they do not get their medicine when needed.
Tanith Muller, of the Parkinson’s UK charity, said bureaucracy and not a lack of goodwill by staff causes the problem.
She said: “It’s hard for those of us who don’t have Parkinson’s to imagine the terror of not being able to control our movements, our speech, our swallowing or our thoughts.
“But many of the people who’ve come here today have experienced it.
“That’s why they’re so committed to stop it happening it to other people and their families.”
Parkinson’s disease is a progressive neurological condition that causes tremors and rigidity in the body.
The committee hearing was attended by around 70 people affected by the disease. They presented a 7,500-signature petition calling on MSPs to urge the Scottish government to take action and ensure NHS boards support people with Parkinson’s.
Ms Muller said: “The issue of people getting their medication on time is an enormous issue for people with Parkinson’s and their families.
“Over a quarter of the 10,000 Scots with Parkinson’s are admitted to hospital each year, many of them on more than one occasion.
“And we conservatively estimate that about 800 of them don’t get their medication on time while they are there. We hear it consistently in every single health board in Scotland.”