An all-party parliamentary group has criticised the provision of services for people with myalgic encephalopathy (ME)
The inquiry set out to evaluate the extent to which the NHS is providing care for people with ME (also known as chronic fatigue syndrome) in England, particularly in primary and secondary care, and in specialist centres or teams.
Dr Des Turner, MP and chair of the all-party parliamentary group on ME, released the final report of the group’s inquiry earlier this week.
The report sets out 11 recommendations to address the inequalities faced by people with ME.
Dr Turner said: “Our report sets out clearly some long standing problems which are simply not being tackled by organisations that should be doing a much better job of supporting the 250,000 people in the UK with ME/CFS.
“We are particularly concerned by the failure of many primary care trusts to fund any services for ME/CFS patients, especially children and the most severely affected. We are also deeply concerned by the by the poor knowledge that many doctors have about this illness and by the failure of the DWP and its contractor ATOS to understand its adverse impact on many patients’ ability to undertake regular work.”