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Category list : Rare conditions

Stories with this category.

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  • claire adams index

    'Nurses have plenty to offer outside the clinical community'Subscription

    Opinion25 April, 2017

    “It’s really important to believe in yourself and put yourself out there,” Claire Adams tells me. The specialist rare disease nurse — more specifically, the specialist severe insulin resistance and diabetes nurse, and senior research nurse — speaks from personal experience.

  • Birmingham Children’s Hospital NHS Foundation Trust

    Children's hospital appoints ‘unique’ specialist nursesSubscription

    News1 March, 2016

    Two new rare disease service nurses, whose roles have been developed with the help of patients, have been appointed by Birmingham Children’s Hospital.

  • NICE backs drug for rare life-threatening blood disorder

    NICE backs drug for rare life-threatening blood disorder Subscription

    News28 January, 2015

    The National Institute for Health and Care Excellence has recommended eculizumab (Soliris) for treating a rare life-threatening blood disorder called atypical Haemolytic Uraemic Syndrome (aHUS).