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'When will the value of specialist nurses be recognised by those who control NHS purse strings?'
Steve Ford, Editor
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This Workforce Summit and Awards, which will be held in September, aims to help organisations attract the best talent while celebrating innovative workforce planning and management
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'No viruses linked to CFS'
"Press headlines stating that viruses have nothing to do with ME are
Scientists, doctors and ME organisations are in contact with the media
about this error because of the damage such misinformation can cause.
The Chia test for which we have the protocol is for the presence of
enteroviruses in the stomach.
It has been known for decades that enteroviruses are involved in ME/CFS
and this test is a tool to show them up. A number of scientific papers
have been published detailing the results. Dr Chia now writes to me that
'we have no doubt these viruses are the major causes of ME/CFS'.
Dr Chia's work has demonstrated the persistent form of dsRNA [double
stranded RNA] in 64% of ME/CFS patients. He writes: 'The more dsRNA the
patient had, the worse they felt. dsRNA was first demonstrated by Lane et
al in the thigh muscle biopsies of ME patients back in 1993. Now, we can
readily find dsRNA in the stomach biopsy.'
Of course there have been red herrings in the search for the real culprit
in this disease. The viruses recently discussed in the press, and which
we never considered to be the cause of ME, are XMRV and pMLV...
The presence of those viruses has now been established as laboratory
But for the press to run headlines suggesting that ME is not connected to
any type of viral infection is just plain wrong-headed..."
Jane Colby FRSA
The Young ME Sufferers Trust
PO Box 4347, Stock, Essex, CM4 9TE
Tel: 0845 003 9002
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The MBE for Volunteer Groups
22 September, 2012
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