Roald Dahl’s Marvellous Children’s Charity is seeking to recruit the world’s first specialist nurse post to support children with undiagnosed illnesses and their families.
The newly-created role will be based at Great Ormond Street Hospital in London, as previously reported by Nursing Times.
The charity told Nursing Times it hoped to have filled the post early this year, with the deadline for applicants on 24 January.
Children with undiagnosed genetic conditions are sometimes called Syndromes Without A Name (SWAN).
The charity noted that SWAN children often have complex medical needs and learning difficulties, and for most, there is no cure and not even meaningful treatment.
In addition, it highlighted there was currently no national provision, or any guidelines, to help support and care for these young people.
The Roald Dahl SWAN Nurse will not only be unique to the UK, but, the charity believes, will be the first of its kind in the world.