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Involving people with dementia in research

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Involving people with dementia in research

Author: Patricia Higgins is a memory service nurse specialist at Bromley Memory Service Oxleas Foundation Trust

THIS ARTICLE WILL TELL YOU ABOUT

  • What is meant by the term “consent”
  • Discussion on the issue of accidentally telling patients that they have dementia
  • Implications of consent and dementia on nursing practice

 

YOU WOULD BE LIKELY TO REFERENCE THIS ARTICLE IF YOU WERE RESEARCHING:

This article gives a good explanation of ethical considerations with regards to research. It talks of the dilemma of needing the views of patients with dementia to inform practice, but of the difficulties in gaining their informed consent. It also explains what is meant by third-party consent.

Although the article looks specifically at patients with dementia, it would be useful if you were critiquing literature and wanted an overview of ethics and research.

 

IN WHAT SITUATIONS WILL THIS ARTICLE BE USEFUL FOR ME?

This article could be useful if you were working with those with dementia, but is more likely to be useful for learning about research methods.

 

QUESTIONS FOR YOUR MENTOR/TUTOR

  • How can consent be gained from patients who lack capacity?
  • When would you use the mental capacity act?

 

STUDENT NT DECODER

The Mental Capacity Act

The Mental Capacity Act (2005) creates a framework to provide protection for people who cannot make decisions for themselves (Mind).

The act is used as a tool to judge whether or not individuals have the capacity to make decisions.

Informed consent

Being able to decide whether or not to be part of a research study, or to accept a healthcare intervention, having been given all the information necessary in order to make this decision.

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