In addition, 40% of Parkinson’s patient have not spoken to a nurse specialist in the last 12 months, suggests the poll by the Parkinson’s Disease Society.
The charity said there currently 120,000 Parkinson’s disease patients in the UK, and 230 nurse specialist posts. This works out that, on average, each nurse will have a caseload of 520 patients, compared with the 300 recommended by NICE.
Lesley Carter, head of influence and service development at the charity, said: Specialist nurses not only ensure patients are able to manage their symptoms effectively, they also offer the local health organisations opportunities to innovate how care is delivered.’
The survey results have been launched to mark Parkinson’s Awareness Week, which takes place from 7-13 April.